Global support for people living with cystic fibrosis
BreatheStrong CF
Advances the wellbeing of people with cystic fibrosis through education, direct support, and opportunities to thrive.
Programs: Exercise Grants (national), Critical Needs Assistance (GA only), BreatheStrong+ (national), Bold Enough to Ask, A BreatheStrong CF podcast discusses men’s sexual and reproductive health amongst other adult relational topics.
CF Together
Dedicated to advancing progress for people living with cystic fibrosis through supports, advocacy and research.
Programs: Peer support groups, support sessions, education, Take A Break program, Carer Respite, Financial support, Individual advocacy, National CF support line.
CF Vests Worldwide
Our mission is to provide life-saving cystic fibrosis therapy vests to underserved patients around the world, ensuring that no one is denied essential care because of financial or geographic barriers.
Rod Spadinger
Programs: (worldwide program) CF Vests Worldwide donates therapy vests; Creon, Zenpep, Pertzye enzymes; and CFTR Modulator Therapies (Trikafta) to global CF communities.
CFPhysio.com Inc
Our mission is to educate and empower healthcare workers (involved in the care of individuals with CF) and all those impacted by CF, in physiotherapy.
Claire’s Place Foundation
Claire’s Place Foundation provides heart-felt assistance to the families of children and to individuals diagnosed with cystic fibrosis. We work to heighten awareness and we provide education, skills, financial and emotional support.
www.clairesplacefoundation.org
Cystic Fibrosis ACT
www.cfqld.org.au/cystic-fibrosis-act/
Under the management of Cystic Fibrosis Queensland, Cystic Fibrosis ACT provides practical, financial and psychosocial support to people living with cystic fibrosis in the Australian Capital Territory. Support includes assistance with medical and hospital-related costs, physical activity, mental health and other household expenses. CFACT also provides access to essential equipment and resources to support cystic fibrosis management at home, alongside peer support, community programs, education and individual advocacy. Through these services, CFACT works to help people living with cystic fibrosis access the support they need to live longer, healthier and fuller lives.
Cystic Fibrosis Foundation of Israel
The association was founded in 1967 as an independent association by the patients’ parents, whose goal is to help cystic fibrosis (CF) patients and their families cope with the disease.
Cystic Fibrosis NZ
Cystic Fibrosis NZ is the only charity in New Zealand dedicated to supporting and improving the quality of life for people with CF and their families. Established in 1968 as a volunteer support group for parents with a newly diagnosed child, we dedicate ourselves to shaping a brighter future for everyone with cystic fibrosis.
Cystic Fibrosis Queensland
Cystic Fibrosis Queensland is the peak not-for-profit charity dedicated to supporting individuals and families affected by cystic fibrosis across Queensland, the NT, the ACT and northern NSW.
Cystic Fibrosis Research Institute
To be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support.
Cystic Fibrosis South Australia
Cystic Fibrosis South Australia is the single representative body for all people with CF in South Australia. We provide connection as well as support, because sometimes just knowing your experience is shared makes all the difference.
Programs:
Cystic Fibrosis South Australia is a trusted source of information and support for people living with cystic fibrosis and their families, providing newly diagnosed support, family and carer support, inpatient services, home based treatments, mentoring and support groups, financial assistance and community events.
Cystic Fibrosis Tasmania
Cystic Fibrosis Tasmania (CFT) helps Tasmanians with cystic fibrosis (CF) live longer and healthier lives and supports and advocates for the CF community and their loved ones. We work collaboratively with other CF Associations around Australia to enhance the lives of those living with CF.
general@cftas.org.aucfsa@cfsa.org.au
03 6234 6085
Programs:
CFT offers a range of services and programs to support people living with cystic fibrosis and their loved ones throughout every stage of their journey. We provide trusted information through fact sheets, as well as emotional, financial and practical support, including health and wellbeing programs, carer support, child care assistance, help with household expenses, income support, medication and travel costs, hospital inpatient assistance, medical equipment support, and a range of other support programs to help you manage life with a chronic condition.
Emily’s Entourage
Accelerates research and drug development for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing CFTR modulator therapies. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.
Filotimo Foundation
Providing adults with cystic fibrosis (CF) the resources and support they need to thrive.
Pete Proimos
LIFC Toscana Odv
We offer many different services, such as assistance to children and their families and support for research, but above all, we strive to provide smiles and a measure of peace. We are the only association in Tuscany that addresses all aspects of the lives of patients and their families, and we have committees located in several Tuscan cities.
Live Fearlessly Foundation
Getting others with CF active and pursuing their passions. We also help people with CF who are on the lung transplant journey.
www.livefearlesslyfoundation.com
Alexis Smith
alexis@livefearlesslyfoundation.org
Middle East Cystic Fibrosis Association
The Middle East CF Association (MECFA) is a nonprofit organization registered in Massachusetts, USA. The mission of MECFA is to improve health outcomes for CF patients in the Middle East, North Africa, and Central Asia.
Partnership to Improve Patient Care
The mission of the Partnership to Improve Patient Care (PIPC) is to advance the principles of patient-centeredness in an evolving healthcare system. We strive to raise awareness about the value of well-designed comparative clinical effectiveness research, the importance of shared decision-making between patients and providers that empowers truly patients to play a more active role in their own healthcare decisions, and the need to advance payment and delivery models that achieve outcomes that matter to patients.
Thayer Roberts
Piper’s Angels
Piper’s Angels supports and improves the lives of families in the cystic fibrosis community through advocacy, innovative programs, awareness, education, life expanding activities, urgent financial support, and funding critical developments.
833-723-9423
Pipes for the People
Pipes for the People empowers children and adults living with cystic fibrosis through free virtual bagpipe music therapy. By combining music education with breathing exercises, the program helps participants strengthen respiratory function, build confidence, foster meaningful connections, and experience the joy of making music together.
pipesforthepeople.ppp@gmail.com
469-880-2538
Project CF Spouse
We strive to create an accepting and understanding space for CF spouses and partners to connect and grow with each other, by creating a community that is supported and informed, while also continuing to advocate for our loved ones.
South African Cystic Fibrosis Association
The South Africa Cystic Fibrosis Association (SACFA) is a non-profit organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements.
The Bonnell Foundation
The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with CF. We strive to connect families with resources all along their CF journey.
thebonnellfoundation@gmail.com
Vivian Lee Foundation
Supports children and adults living with cystic fibrosis in the daily struggles and challenges.
Christy Rimrodt
christy@vivianleefoundation.org